Comments left by Visitors

Rhiana Halverson
I found Sophia's story through your photographers blog..I can't even begin to tell you how much my heart is aching for your family and for your beautiful baby girl. I have a 13 month old daughter who is the light of my life (as is Sophia for you I'm sure) I don't have much to spare at the moment, but I wanted to send a little something to help. I'm praying that Sophia is blessed with health, and it is very obvious that she is showered with love. I'm sure you struggle in ways I can't even imagine....Thank you for sharing your story and giving me some perspective that I was so greatly needing lately. Blessings to you all from a mom in Minnesota.

Carmelita Seufert
Still thinking of you and praying for you and your beautiful Sophia...here first Christmas pictures are just precious...may it be the FIRST Christmas of MANY to come! Blessings to you and your family!

Regina
My thoughts and prayers are with you and your family. I will continue to pray for Sophia each day as well as for a cure. I have a two month old daughter and I can not imagine what you are going through. I will spread the word about SMA! God Bless you and Sophia!

Lisa R.
My thoughts and prayers are with you. Sophia is an angel. I will continue to pray for a cure and keep you all close to my heart with loving thoughts and prayers. God Bless Sophia and you.

Elizabeth G.
There is nothing like the support of family and friends to help you stay strong for your children. My sister in law fowarded this site to me via e-mail. I knew very little about this condition. And now that I've learned more about Sofia's condition I too will spread the word about Spinal Muscular Atrophy. God Bless you and your little angel.

Susan G
God Bless your family, From our family, donation requested by SEAN C. instead of a birthday present. from Daniel G

Becky
My prayers are with you and your family always.

Allyson Dwyer
For Sophia to have a fighting chance. My nephew Owen passed away from this awful disease and I hope we are close to a cure so that no other innocent babies have to suffer.

Sally
I pray that the trial begins as planned. I heard you on the radio last Sunday as well. I am so touched by Sophia and hope that you are both able to stay strong and keep believing. Your positive energy and attitude is inspirational. God Bless your family.

maria zambrano
your story touched me and has educated me in many ways. i wanna help spread your story and hopefully have many more donations coming your way. i put a link of your story on my fb homepage. god bless your family and your baby girl sophia

sophia
omg im so sorry but dont worry sophia is gonna be just fine. god is watching. my prayers r with u.

Genesis
Today Nov,1 was the first time i heard about this disease on the radio, it was really emotional just hearing everything that Baby Sophia is going through. Im a mother of two, my Daughter is 23 month old name Jennifer and my son Ryan Jr whos 4 month old, i know that i would fight for them too. Sophias parents are wonderful people for not giving up and fighting for their beautiful Baby girl. I will pray for her and for all of the kids that are going through the same. God Bless your Family!

Amber Aponte
Sophia is so beautiful and precious. I pray to God for some advancement to erase this affliction. God Bless Sophia, and God Bless you both on this journey. Let us be thankful for our being on earth together in this moment. Love is eternal.

Stephanie Gallone Nutter
We heard about Sophia through a mutual friend, Alexandra Witte, we were moved by your story and want you to know that Sophia is in our prayers!! God Bless!!

Denise
My heart and prayers are with your family! I hope they find a cure for this soon. God bless you Denise

Kalei
I have to say, what Ryan and Dennis are doing is extraordinary and inspiring. I was lucky enough to be witness to their journey as they stopped in Pittsburgh, PA. Ryan and Dennis stopped at our home to enjoy a cozy fire and some RR before they headed towards their goal. Thank you to them for doing something for someone else. It was great meeting them and great that they are spreading awareness of this disease. I wish only the best for the family, friends and supporters of Sophia. Good Fortune on this ride across the continent! Kalei Pittsburgh, PA

Donna Olsen
Just wanted to let everyone one that Starting July 31 and every Friday evening in August, There is an ongoing fund raiser @ Farmingdale lanes in Farmingdale. 999 Conklin Street,Farmingdale NY Hosted by Friends of Sophia's. Come down for unlimited bowling from 6-9 pm. (Shoe rental included) for only $20.00 per person. $10.00 from EVERY BOWLER will be donated to Sophia's Cure. So gather up all your friends and family and come down to help support a great cause and together we can help find a cure.

Zoe K.
I read in the newspaper about Sophia's troubles and I was totally heartbroken. I really hope that your family will reach their goal at donations. Best of wishes to you and your family.

Kristen B.
Words cannot express how I feel for your family. I first heard about Sophia from the girls on LIF and I was shocked by the news. I am so sorry for what you are going through and my heart breaks for poor, little Sophia. I am praying for you that you are able to find a way to help her so she can live a long, happy, healthy life. Many hugs and prayers for your beautiful baby girl.

Mrs. Anita R T
Dear Blessed Couple, I am very sorry to hear about Sophia's condition.But from the moment I saw you all on Fox 5 I started praying for you. You have the miracle in your mouth. Speak out that the Baby has a long and healthy life. Our Lord Jesus Christ is a living GOD, HE hears your cries and is answers all the prayers. Surrender the baby into HIS hands and say " Dear Lord, we surrender the baby in your loving hands, and plead your precious blood on the baby, and we want to see your Glory in the babies life.Amen!" Thats it , you will see miracle which in on the way. Jesus spoke life in dead people, he rose Lazarus from death on the 4th day. HE is the samw yesterday,today and forver. All you need is "FAITH" which is free, but very demanding. Just walk in Faith, I am praying for you. Waiting to hear baby's recovery through the blood of Jesus. Hugs to you and baby Sister Anita

Jennifer Delp
Hi there, I want to share a website with you to give you hope for Sophia. Lily, passed in May of 2008, but she lived nearly 7 years. Kids with sma CAN live longer than two years! I would read before May 2008. http://princesslilysworld.typepad.com/ I am praying for little Sophia! Jennifer

Jennifer Pampuch
Your baby girl is beautiful- I heard about your family through Jen and Chris Elsne( Peyton's mommy and daddy) - they are one of our best friends - I can't imagine what all of you are going through - You and your family are in my thoughts- Like I say to the Elsners- you have to HOLD onto HOPE- Believe in Miracles- She told me about the SMA conference and how they are hopefully going to run clinical trials for stem cell research for SMA patients- if that happens I hope your daughter will be one of the one's first in line- Your website is so beautiful- Sophia is very lucky to have loving and strong parents like the two of you- Jennifer

Valerie Title
Hey Guys, I just saw your Fox News clip. Thank you for helping get the word out and for all the hard work you are doing to find a cure!! My grandson Aiden Bundy also has SMA Type 1. He is now 2 1/2 years old. We have been woking with FSMA and the MDA for the last year to raise funds to help find a cure. I will send the link to your news story out to my network of friends and post it on my Myspace and Facebook. Again thank you for all you are doing, Sophia is beautiful! Love and Hugs, Aiden's G-mama Valerie

Renee Hall
It is my dearest wish to receive an invitation to Sophia's college graduation. In God's grace and love, all things are possible! Vincent and Catherine...you are truly inspiring!

Heather Shaub
Hi, I am a friend of Dawns and I just visited your website. I am so heartbroken for you and your wife. My tears wont stop and I am praying aloud and asking Him why, how these things are possible, as I look at these precious pictures of your little baby girl, I feel helpless. I am a mother of two boys, my youngest only a few months older than Sophia. I cant imagine what it is like for you and I dont know exactly what to say, but I needed to let you know that my heart goes out to you and that I will give whatever I can and foreward this to as many people as I can. My prayers are with you. She is beautiful. Cherish every moment with that lttle angel.

Jeanna
Great news piece you did !! Good job!! I finally got to watch it all with out it freezing on me. You all looked Great!! Iit was great finally meeting you and your beautiful family at the FSMA conference. www.our-sma-angels.com/elizabeth

Sapna Pringle
Your website is great and I am so happy to see all the fundraisers you are doing for SMA. Our daughter is 18 months today and was diagnosed with Type 2 shortly after her 1st birthday. I am glad the word about SMA is getting out and I actually got this website from our daughter's OT. Good luck with the upcoming events!

Brandy D. Shifflett
Sophia is so beautiful! I'm praying just like you that a cure is found soon for our sweet angels. This is a wonderful website! I'd love to add my daughter's picture to your gallery. I clicked on the form, but nothing happened. Thanks a lot and God bless! Brandy D. Shifflett Mom of Emma, 5 Years Old, SMA Type II www.caringbridge.org/visit/emmagraceshifflett www.our-sma-angels.com/emmagrace www.youtube.com/user/Shifflett80 www.myspace.com/sma_mommy www.facebook.com/smamommy www.smaspace.ning.com/profile/EmmasMom www.mdfamilyfun.ning.com/profile/Emmasmommy www.mymda.mda.org/sma_mommy

CFMama
My mother in law (maiden name Grogan) told me about your family and just wanted to stop by and show some love and support. We are related somehow (through my husband's cousin. My heart aches for your family and precious little Sophia. Although I cannot afford to make a donation (we are facing medical issues with our son who was diagnosed with CF) I will pray that God protects Sophia and makes it possible for you to begin the trial. I will also be posting a link on my website www.nathansfight.com to send some more supporters and possible donors your way. {hugs} Christina (CFMama)

Cathy Skinner
I was happy to see SMA getting some attention this morning. Your story breaks my heart as do all the stories of our SMA babies. My nephew, Logan Patrick, was 5 months old when he was diagnosed. He is now 2 and 1/2 years old. He continues to loose muscle strength, but he is still able to breathe on his own while awake. He uses BiPap when he sleeps. It has not been without many, many scary moments, however. I see that you are a part of Families of SMA. I think this organization provides wonderful support, networking between families, and very important fundraising. I am a part of the Alabama Chapter. I hope you have made contact with other parents. My sister would be glad to talk with you if you have any questions about how they have handled certain things....just figuring out how to carry him in the car after he outgrew the infant seat took several suggestions from other families. He has a caring bridge site at caringbridge.org. His name is "BabyLoganPatrick" Good luck to you and Sophia.

Rich Miller
I watched the three of you on Fox this morning. Your daughter is a sweet heart, she had me at the first Koo,. I'm so sorry I will only be able to help by telling everyone I know on Facebook to look at your site. Please remain optimistic. Both of my son's were born premature but had a good prognosis as they were 3.3 lbs and 4.8 at birth (1982-1984). I and my wife do know the roller-coaster ride that follows. I only pray you will be able to get the good news your heart desires.

Annette Reed
Hello Sophia (and family)! It was so nice to meet you this past weekend! What a beautiful site! I'm excited to be here to follow along with you on your journey. Love and HUGS!